Live Reviews From Google

Charlotte Reid
Charlotte Reid
21:11 12 Jun 19
My son has dystonic cp from a full term birth injury.We were told to wait and see how he would develop but from day one, I knew that things weren’t right. In NICU, I struggled to get breastfeeding going as his head pulled to one side and he struggled to latch. At 2 months, he was pushing back and arching constantly. His lips were often pursed with his tongue thrusting out and he had tremors in his arms. Also breastfeeding had become incredibly difficult - I was having to sit him facing me with his neck craned back so that he was looking upwards to feed. He would also often cough and choke when feeding.We got a ‘diagnosis’ of emerging cp at about 4 months. My son’s arms and legs were becoming increasingly stiff at this point. Nobody could give us any answers as to the type of cp or severity - just more waiting and seeing.It seemed to me that we were looking at the severe end of the spectrum from my son’s state at only 4 months old. This also seemed to be in line with his MRI which had showed “acute profound hypoxia”. If this was the case, I knew from contact with other parents with children with full term birth injuries that we would likely be facing a non-verbal and non-mobile child.At this point, I felt utterly lost and anxious for my son’s future. I decided that there had to be somebody out there that could help my son. So I phoned every therapy that I knew of in the UK that related to cp. Out of 12 calls that day, only one person made any sense to me - Jean-Pierre Maes.He spoke to me about my son’s brain - he explained that his therapy would target the underlying cause of my son’s difficulties (his brain) rather than focus on his symptoms. He explained that his therapy would use movement so that the brain would make connections through the damaged areas. This would therefore reduce atypical movement. And these connections would need constant upgrading as my son developed physically and cognitively to achieve long term maximum functionality. Essentially, neuroplasticity at its best. I instantly knew from just this short conversation that I had found someone that was technically brilliant. Whereas other professionals in this field couldn’t answer my questions, Jean-Pierre could answer every single one - and in detail. A week later we started MAES therapy.This decision has paid off hugely. We see no involuntary movement typically seen with dyskinesia and we don’t see our son getting ‘stuck’ as often seen in dystonic children.At 16 months, my son does not extend/arch; has no stiffness in his limbs; eats most solid food; makes sounds in most positions when exhaling (ie he can coordinate his breathing); can roll across the floor; can put his feet in his mouth; takes no medication; and needs no equipment. And he has recently started sitting independently for short periods in a quality way. Overall though, the main thing for us is that our son is making quality improvements all the time.I often feel that non MAES therapists do not believe there is a credible treatment option with dystonic cp besides drugs. My son is a testament to the opposite.Also, because MAES therapy targets the injury to my son’s brain rather than dealing with his symptoms, as our son progresses, all areas that he has difficulty with as a result of his cp (movement, speech, respiration and eating) all improve together. This is crucial to us as it means that we are not overwhelmed with medical appointments - we have it all at MAES.I personally cannot recommend MAES therapy highly enough. Whilst many therapies remain stuck in traditional teachings and may exacerbate symptoms, the MAES approach is innovative, visionary and effective.On a personal level, I will never be able to express my heartfelt gratitude to Jean-Pierre, Ellie, Zorana and the team. They are giving my son a chance at having a good quality of life. I don’t know exactly where he will end up but I believe that MAES is giving him the best possible outcome. I sincerely believe MAES therapy is the future for children with cp.
Charlotte Reid
Charlotte Reid
21:11 12 Jun 19
My son has dystonic cp from a full term birth injury.We were told to wait and see how he would develop but from day one, I knew that things weren’t right. In NICU, I struggled to get breastfeeding going as his head pulled to one side and he struggled to latch. At 2 months, he was pushing back and arching constantly. His lips were often pursed with his tongue thrusting out and he had tremors in his arms. Also breastfeeding had become incredibly difficult - I was having to sit him facing me with his neck craned back so that he was looking upwards to feed. He would also often cough and choke when feeding.We got a ‘diagnosis’ of emerging cp at about 4 months. My son’s arms and legs were becoming increasingly stiff at this point. Nobody could give us any answers as to the type of cp or severity - just more waiting and seeing.It seemed to me that we were looking at the severe end of the spectrum from my son’s state at only 4 months old. This also seemed to be in line with his MRI which had showed “acute profound hypoxia”. If this was the case, I knew from contact with other parents with children with full term birth injuries that we would likely be facing a non-verbal and non-mobile child.At this point, I felt utterly lost and anxious for my son’s future. I decided that there had to be somebody out there that could help my son. So I phoned every therapy that I knew of in the UK that related to cp. Out of 12 calls that day, only one person made any sense to me - Jean-Pierre Maes.He spoke to me about my son’s brain - he explained that his therapy would target the underlying cause of my son’s difficulties (his brain) rather than focus on his symptoms. He explained that his therapy would use movement so that the brain would make connections through the damaged areas. This would therefore reduce atypical movement. And these connections would need constant upgrading as my son developed physically and cognitively to achieve long term maximum functionality. Essentially, neuroplasticity at its best. I instantly knew from just this short conversation that I had found someone that was technically brilliant. Whereas other professionals in this field couldn’t answer my questions, Jean-Pierre could answer every single one - and in detail. A week later we started MAES therapy.This decision has paid off hugely. We see no involuntary movement typically seen with dyskinesia and we don’t see our son getting ‘stuck’ as often seen in dystonic children.At 16 months, my son does not extend/arch; has no stiffness in his limbs; eats most solid food; makes sounds in most positions when exhaling (ie he can coordinate his breathing); can roll across the floor; can put his feet in his mouth; takes no medication; and needs no equipment. And he has recently started sitting independently for short periods in a quality way. Overall though, the main thing for us is that our son is making quality improvements all the time.I often feel that non MAES therapists do not believe there is a credible treatment option with dystonic cp besides drugs. My son is a testament to the opposite.Also, because MAES therapy targets the injury to my son’s brain rather than dealing with his symptoms, as our son progresses, all areas that he has difficulty with as a result of his cp (movement, speech, respiration and eating) all improve together. This is crucial to us as it means that we are not overwhelmed with medical appointments - we have it all at MAES.I personally cannot recommend MAES therapy highly enough. Whilst many therapies remain stuck in traditional teachings and may exacerbate symptoms, the MAES approach is innovative, visionary and effective.On a personal level, I will never be able to express my heartfelt gratitude to Jean-Pierre, Ellie, Zorana and the team. They are giving my son a chance at having a good quality of life. I don’t know exactly where he will end up but I believe that MAES is giving him the best possible outcome. I sincerely believe MAES therapy is the future for children with cp.
Hannah Head
Hannah Head
20:29 03 Feb 19
We feel lucky to have found Maes therapy as it has been very difficult finding good quality therapy for our daughter which is not the prescriptive traditional approach. I myself am a physiotherapist (although in a different speciality) and it has been reassuring for me to have expert therapists within their field treating my daughter. I can follow the principles they are applying into my everyday care of my daughter rather than just setting aside a 'therapy' time each day.
Tandi Kolbe
Tandi Kolbe
08:08 19 Jan 19
Recently Evie volunteered on a MAES training course held by Jean-Pierre in Johannesburg, and after attending a parents training presentation given by Jean-Pierre, I now understand why Evie made such significant improvements following her physiotherapist completing a MAES course. From being completely immobile, with regular MAES therapy, Evie started moving all her limbs, and she is now demonstrating a lot more head control. She loves movement, and with MAES she is gaining the awareness and the self-confidence to move. Even though Evie is unable to talk, Jean-Pierre is able to communicate with Evie, and discern her ability, and her potential. Watching their engagement left me teary eyed, and full of hope. “Evie has cognitive ability far greater than what we see. Do not limit her. If you do everything for her, she will not learn to move.” This advice has changed how I parent Evie; from picking her up, to playing with her, to getting her ready for bath time, and even feeding her. I talk to her knowing that she understands far more than what I ever imagined. Thank you Jean-Pierre for not only giving Evie more confidence to move, but for helping me to let go of trying to do everything for her. I can see Evie continuing MAES for a very long time, and with the most genuine an appreciative heart, my hope is that many children like Evie get the incredible opportunity to work with Jean-Pierre who truly sees and understands them.
Beth Plummer
Beth Plummer
21:00 05 Dec 18
When I was told my son had a brain injury I felt frightened and lost. The nhs offered limited physio with lots of repetitive, generic exercises. The MAES team offer regular personalised movement therapy which has allowed my son to discover and become creative and confident with his movement. Catia and JP have taken time to understand him: his areas for development; what motivates him. They have also been a huge support for me and I am no longer afraid - I am excited!
Bev Chambers
Bev Chambers
21:02 30 Nov 18
It has been fascinating watching the transformation in Jess's body over the past eight months since beginning MAES therapy. We have been given a new perspective on, and a different approach to, cerebral palsy - which has allowed a freedom not just physically but cognitively and emotionally too. The balance that Jess is finding between caution and courage is freeing a sense of risk-taking we haven't seen for years. Thank you all!!Jess's words...MAES has given me a fundamental understanding of where I am in space and a much needed sense of stability in a world where cerebral palsy often makes me feel unstable and disconnected. I am learning so much about my body and how it interacts with the environments around me, and this holistic approach is allowing me to achieve much more than previous therapies. It offers me a safe space in which to explore and push boundaries, which means I can meet outcomes as a by-product of larger work rather than them being the main focus. Thank you Jean Pierre, Ellie and the team!
Helen Kilby
Helen Kilby
09:49 29 Aug 18
Impressed with the concept and framework as well as the approach and enthusiasm of the team
perpetual curving
perpetual curving
18:11 11 Aug 18
My three year old, who has Down's Syndrome has made fantastic progress since his MAES therapy with Ellie. We've seen a massive improvement with his co-ordination and balance and fine motor skills, but also his motivation to communicate and sign with us. He's a much happier little boy now.
Nikki Kennedy
Nikki Kennedy
13:44 27 Apr 18
MAES Therapy and its team provide specialist physiotherapy for children and babies with movement and coordination presentations, including cerebral palsy. Their in-depth knowledge and analytical skills enable them to provide high quality, individualised therapy and advice for children and their families. MAES therapy is far in advance of other approaches in this field and provide a range of courses for healthcare professionals. If you have a child with cerebral palsy or you are a therapist looking for a deeper understanding of children with movement disorders then this is the place for you.
Portia Webb
Portia Webb
21:07 05 Apr 18
I cannot recommend MAES therapy highly enough. We came across it when our daughter had just been diagnosed with CP at 10 months old. My husband and I actually initially set out to find a private physio to top up our NHS support, and accidentally came across MAES therapy. Not knowing what it was we decided to just give it a try (it is not widely known about in the UK yet - although that is changing fast) and after just the first session we were hooked. It was the first time that someone had actually taken a true holistic approach to assessing and treating our daughter - explaining not just her physical difficulties but also the impact on her psychological and cognitive traits, and how these pieces all fitted together. The MAES's approach is about working within your child's capabilities in order to help them progress and widen their movement repertoire. My child has made such significant progress in the last 8 months and as a parent I feel equipped from the sessions to apply the MAES approach at home. It takes understanding, persistence and commitment but the results are so worth it.
Charlotte Jarman
Charlotte Jarman
09:47 13 Mar 18
For me, the wonderful thing about MAES Therapy is how it is tailored specifically to the needs of each child. This is not a one-size-fits-all approach, and it looks very different to any other kind of physiotherapy I have seen before. Jean Pierre and Ellie and the rest of the MAES team are totally committed to improving outcomes for each child that they see, and they start by identifying the specific challenges that your child faces. They then develop ways to help your child address those challenges, with a big emphasis on what we as parents can do at home. JP and Ellie also have a wonderful way with children, and make the sessions fun (as well as challenging, in a good way!). I would highly recommend MAES Therapy to any parents of a child with a neurodevelopmental condition.
Ben Zammit
Ben Zammit
21:38 06 Mar 18
The MAES team's depth of knowledge of cerebral palsy and their dedication to improving their skills and understanding makes this place a center of excellence. You can expect an extremely high quality service and some great outcomes, (including a better ability to interpret your child's movement and behaviour) if you choose to work with MAES therapy. Would definitely recommend investigating this clinic if you have a child with cerebral palsy.
Beatriz Zerolo
Beatriz Zerolo
14:51 13 Feb 18
“MAES Therapy is for our family something magic, mainly because it gives what many other therapists don’t. It is also magic because it keeps all the family happy, not only our daughter but also her brothers and parents. It shows you specifically the way things can be improved and you get a clear idea of where you are with your child and what you can do to improve. Also what you can expect from the child, which is key for me in order not to ask her too much.Not only has our daughter improved more than we thought possible, and as her mother I get confidence to treat her in the right way, helping her to become independent and to make her own effort to improve (with help when needed).I highly recommend the MAES Therapy Approach and in fact this is what I say when I am asked about how my daughter is doing so well”
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